Followers

Tuesday, March 23, 2010

Understanding

Shortly after David was diagnosed with mid to low functioning autism I used to to get a little miffed when people would say things like "God would've never given you an autistic child if he didn't know you could handle it ".

Wait. Was I supposed to be "thankful" that my son was given a dibilitating condition just because *I* could handle it. Heck, give *me* the whammy, not my son, if you don't mind. Never mind the fact that I've seen parents that couldn't handle being parents even under the best of circumstances.

Still there was some truth to those statements and I knew it.

When I was a little boy, a little younger than David is now, I had a friend, Corey, who lived next door. We played together frequently and he had some kick-arse toys, including, what I thought was a *cherry* rocking horse. I loved the rocking horse so much that I asked my parents for one. I was told that I was too old for this particular magical rockin' steed.

Too old ? How could this be ? Corey was a year older than me. Now I was no math whiz but something wasn't right there.

Later on I saw Corey sweeping the sidewalk in his underwear to avoid a bath that his Mom was trying to get him to take. It was then that I started to understand that something very different was going on next door.

Clearly, there was a horrific monster in their bath tub ! As a high-strung easily traumatized child I asked my Dad about it. One never knows if a monster can traverse from tub to tub and wasn't in a hurry to find out. I approached the subject cautiously trying to avoid any mention of monsters.

My Dad explained to me that Corey had Down's Syndrome. I'm not sure if my Dad described it as such. He may have used a word I tend to bristle at now. He certainly didn't use the truncated version of that word that I have a much more visceral reaction to. ( A subject for another time. ) My Mom had a brother who was so severely mentally handicapped that he "had" to be institutionalized and as such I know my parents would have never intentionally used a pejorative term for a mentally challenged person.

We moved away a little while after Corey's behavior was "explained" to me but I know we played together after I knew of his condition. I probably I didn't look at him quite the same way but I knew one thing. I sure liked him a lot.

So it was that growing up I never thought making fun of the mentally disabled was *ever* appropriate. I've tried to always dissuade people from such behavior particularly the use of certain words. I've always tried to be supportive , patient and understanding of those with special needs.

So I *guess* that means that I was ,in fact, an ideal candidate to parent a child with a disability and I have to admit now that the thought of it being preordained doesn't bother me at all. You see Corey taught me well . More than that my beautiful son taught me what life and love are all about.

Thank you, Corey, wherever you are.

10 comments:

  1. ...and thus, your 4th dimension (a term I use to describe people that have people with disabilities in their lives)is explained. I always knew you were special, now i know why...

    ReplyDelete
  2. Thank you for sharing that, my cousin. Preordained or not, you guys are such caring, intelligent, informed parents. David could not have better. And I really hope that Corey is out there living a very happy life.

    ReplyDelete
  3. Isn't it amazing how things look different when we're kids? It's great that Corey had your friendship then, and it's wonderful that David has your love now. And I will remember never to tell anyone that God has given them no more than they can handle, because that just doesn't seem very comforting regardless.

    ReplyDelete
  4. Your blog posts ring with truth and kindness and always make me happy to know you. Regarding difficulties of any kind in life, I've had a few, my family has had lots. We either rise to the occasion, or we find that we cannot. Hopefully, when we cannot, we are able to ask others to help us, and it's wonderful to know that you and yours are out there, as well as all the other lovely humans I've met online, to lend a hand, an ear, a story from their own life, to show that we're all in this very strange boat together. Thank you! ~mocoddle

    ReplyDelete
  5. I love your description of "the word." My mother has CP and she has the same reaction to the word "spaz."

    ReplyDelete
  6. Dedication has nothing on you man! Very Nice

    ReplyDelete
  7. Shawn I am incredibly blessed to know you. If anyone has ever volunteered at the Special Olympics you see the most beautiful smiles on all of their faces. People and children with any affliction seem to radiate love and happiness. We should all be more like them.

    ReplyDelete
  8. I love your blog. It always reminds me to keep my life in perspective....past, present and future. Thank you. Thank you very much.

    ReplyDelete
  9. What a very moving and touching blog.

    ReplyDelete
  10. Thank you for sharing that....you are a wonderful person and better yet, a wonderful father!

    ReplyDelete